WEBSITE - Status of Site (new diary entry added Sept 2, 2014)

Bob with his wife and Caretaker Janice

Bob O'Donnell with Granddaughter Delaney

Bob O'Donnell with Grandson Sammy

 

 

Web Site Table of Contents

Basics about Alzheimer's Disease, and other Dementia's (Frontotemporal Dementia(FTD), etc.)

Chat room for Patients

Chat room for Caregivers

Support Groups for Patients and Caregivers

Alzheimer's Association

Frontotemporal Dementia Association (FTD)

Bob's Biography

References

Computer / Internet Requirements

Resources

Complete Acknowledgements

 

 

 

IEEE New Hampshire Section in Affiliation with the Alzheimer's Association of the Massachusetts / New Hampshire Region and the Psycology Department of the University of New Hampshire

The Autobiography - Video Diary of My Journey with Dementia

by Bob O'Donnell (bob.dementia@gmail.com)

If you would like me to email you a note when I add entries to the diary, send me your email address (i will not pass it on to ANYONE) without your permission, also if you don't mind I would like to know where you are from (city state) so I can tell geographically how far the web site is reaching; same for any comments and and if I can put them in chat room ( no names just initials)

Welcome

I was diagnosed with dementia in Oct 2013. (More recently, after an evaluation by the Memory Disorder Dept. at Massachusetts General Hospital, the diagnosis was changed to probable Alzheimer's diseaase.) I decided in early 2014 to document at ~2-4 week intervals the progression of the disease, in the hope that other patients and caregivers would gain some psychological insight and be better able to better cope. I believe and hope that, those with Alzheimer's disease and other forms of dementia will gain significant personal insight on how to cope with their malady, if they view and listen to my journey. My journey will not be presented in a sterile manner, but with all of the emotions that accompany it: the anger , the tears, the perseverence , the despair, hope, and of course the love and caring that is and will be given Janice, my dear wife, and the rest of my family, my church family, and my physicians. The above "Introduction and Welcome to this Project" video expands on this paragraph

Video Diary

Prelude to Project (this was recorded before my diagnosis was changed from Frontotemporal Dementia FTD to "probable Alzheimer's"-- in late June 2014

1. Mid 2011 to Oct 2013 Pre "FTD" Diagnosis

2. Post Oct 2013 to April 2014 Post "FTD" Diagnosis but befofe"probable Alzheimer's" Diagnosis

Monthly Entries

3. May 5, 2014 (27 minutes)

4. May 28, 2014 (25 minutes)

5. July 2, 2014 (30 minutes) 1st entry after "probable Alzheimer's" Diagnosis

6. July 25 2014 (28 minutes)

7. Sept 2 2014 (30 minutes)

8. Next entry in 2-4 weeks

Typical Viewer Profile

Any person afflicted with any form of dementia : Alzheimer's Disease. Frontotemporal Dementia, etc.; Caregivers of those with dementia;Medical clinicians and other medical personnel, from neurologists, primary care physicians and to any other interested persons that dementia has touched

Acknowledgements

TBD

Dedication

I dedicate this diary/web site to all of those who suffer from this set of diseases: the patients, their caregivers and the doctors and researchers, who are working tirelessly to treat and find the causes and cures for dementia